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The Candlelight Concert for Epilepsy Awareness is a fundraising concert series to raise awareness and spread the facts about epilepsy. Currently, the house concert series is in Pennington NJ and open to a very limited number of guests (40 per show.) The shows are also streamed online using StageIt.com, with proceeds going to various epilepsy charities.
Friday May 24th, 2013 |



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Live at Trinity Singer In-The-Round All on one night!!
ARI HEST, CHRIS TRAPPER, (of THE PUSH STARS) & DAN REED
7:00PM Doors / 8:00PM EST Show $20 Tickets
NEW VENUE!!
Trinity UMC
1985 Pennington Road
Ewing, NJ 08618
[Map]
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Monday October 14th, 2013 |

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Live at Trinity
ED ROLAND (of Collective Soul) & THE SWEET TEA PROJECT
7:00PM Doors / 8:00PM EST Show $20 Tickets
Trinity UMC
1985 Pennington Road
Ewing, NJ 08618
[Map]
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Saturday October 19th, 2013 |



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Live at Trinity Singer In-The-Round All on one night!!
ERIC BAZILIAN, MARSHALL CRENSHAW, & FREEDY JOHNSTON
7:00PM Doors / 8:00PM EST Show $20 Tickets ($25 at the door)
Trinity UMC
1985 Pennington Road
Ewing, NJ 08618
[Map]
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In Honor |
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The Candlelight Concert for Epilepsy Awareness is being sponsored and promoted in part to honor the memory of Carolina Barcelos Carneiro de Oliveira Miller. On August 22nd, 2011, Carolina, age 25, passed away tragically and suddenly as a result of epilepsy/seizure disorder. Carolina was diagnosed with epilepsy in her teenage years; she had taken medication daily and kept it mostly private, due to the stigma too often associated with epilepsy. This fundraising effort is designed to reverse the history of stigmatization and further contribute to seeking a cause and cure for epilepsy.
Please Click Here to Read More About Carolina
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Quick Facts About Epilepsy (Mouseover to Pause) |
Epilepsy affects over 3 million Americans of all ages – more than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s disease combined.
Ten percent of the American population will experience a seizure in their lifetime.
Epilepsy can develop at any time of life, especially in early childhood and old age.
In 70 percent of new cases, the cause remains unknown.
In over thirty percent of patients, seizures cannot be controlled with treatment.
Uncontrolled seizures may lead to brain damage and death.
Epilepsy is the third most common neurological disorder in the United States after Alzheimer’s disease and stroke.It is equal in prevalence to cerebral palsy, multiple sclerosis and Parkinson’s disease combined.
The leading non-medical problem confronting people with epilepsy is discrimination in education, employment and social acceptance.
It is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning and other accidents.
Epilepsy affects 50,000,000 people worldwide.
Historically, epilepsy research has been under-funded. Federal dollars spent on research pale in comparison to those spent on other diseases, many of which affect fewer people than epilepsy.
The severe epilepsy syndromes of childhood can cause developmental delay and brain damage, leading to a lifetime of dependency and continually accruing costs—both medical and societal.
Almost 500 new cases of epilepsy are diagnosed every day in the United States.
The belief that people with epilepsy are violent is an unfortunate image that is both wrong and destructive. People with epilepsy have no greater tendency toward severe irritability and aggressive behaviors than do other people.
Epilepsy is not the same as mental illness and in fact, the majority of people with seizures do not develop mental health problems.
Single tonic-clonic seizures lasting less than 5-10 minutes are not known to cause brain damage or injury.
Most cases of epilepsy are not inherited, although some types are genetically transmitted (that is, passed on through the family). Most of these types are easily controlled with seizure medicines.
Epilepsy has nothing to do with curses, possession, or other supernatural processes, such as punishment for past sins. Like asthma, diabetes, and high blood pressure, epilepsy is a medical problem.
Epilepsy is not a single entity but a family of more than 40 syndromes.
Epilepsy strikes most often among the very young and the very old, although anyone can get it at any age. In the U.S., it currently affects more than 326,000 children under age fifteen and more than 90,000 of them have severe seizures that cannot be adequately treated.
Epilepsy imposes an annual economic burden of $15.5 billion on the nation in associated health care costs and losses in employment, wages, and productivity.
The mortality rate among people with epilepsy is two to three times higher than the general population and the risk of sudden death is 24 times greater.
Of major chronic medical conditions, epilepsy is among the least understood even though one in three adults knows someone with the disorder.
Lack of knowledge about proper seizure first aid exposes affected individuals to injury from unnecessary restraint and from objects needlessly forced into the mouth.
The leading non-medical problem confronting people with epilepsy is discrimination in education, employment and social acceptance.
Epilepsy Info and Resources |
The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
Team Epilepsy is conducting some amazing clinical studies. Their clinical study is designed to determine if an investigational antiepileptic medication is effective in controlling partial-onset seizures. This is a study of monotherapy use of a study drug, which means the study drug will be added to your current epilepsy drugs and then your current drugs will be slowly removed. All patients in the study will receive the study drug.
CURE Citizens United for Research in Epilepsy is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of epilepsy.
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